Duke University Hospital Selected as Center of Excellence for Treatment of Brain Cavernous Malformations

Duke University Hospital has been selected as a center of excellence for the treatment of brain abnormalities called cerebral cavernous malformations (CCMs) in adults and children.

Designation by the Alliance for the Healing of Cavernous Defects recognizes the hospital for providing specialized, integrated, multidisciplinary care and cutting-edge research to CCM patients and their families. It is the only CCM Center of Excellence in North Carolina.

A cavernous malformation is a collection of abnormal blood vessels often found in the brain and spinal cord. They are a common cause of stroke, cerebral hemorrhage, and seizures in otherwise healthy patients. CCMs can develop at any age, including in children, although they are more likely to become symptomatic in young adults.

Duke University Hospital is privileged and honored to be certified as one of the very few Centers of Excellence in the country. This is where the genes responsible for cerebral cavernous malformations were discovered.”

Dr. David Hasan, cerebrovascular neurosurgeon at Duke

“We use state-of-the-art tools to diagnose disease and provide effective care,” Hasan said. “Our clinical excellence and the expertise of our neurosurgeons have also led to excellent patient outcomes, even when tackling very complex cases.”

The Alliance to Cure Cavernous Malformation is a non-profit organization that supports the search for better treatments and a cure for brain conditions. Criteria for its Center of Excellence designation include:

  • Appoint a multidisciplinary council of clinical specialists, including cerebrovascular neurosurgeons; vascular, epileptic and pediatric neurologists; neuroradiologists; and geneticists who all collaborate in the diagnosis and management of patients with cavernous malformations.
  • Have at least two additional medical specialists with expertise in cavernous malformation in one of the following disciplines: pediatric neurology, pediatric neurosurgery, dermatology or neuro-ophthalmology.
  • Maintain an active clinical research program with a publication history that may include natural history studies, comparative treatment outcome research, genetics/genomics research, and/or clinical drug trials.
  • Host at least one patient education event per year, independently or in conjunction with Alliance to Cure Cavernous Malformation.

Comments are closed.